fragilex mom blog

We signed our wills today. Jeez its about time. Well it is a done deal now! I slept really well last night but I sure am tired now. I need to go to walmart and get batteries for the camera for special olympics and I need a disk so I can make Danny a video. I also need to write Ken a love letter. I am so lucky to have him in my life.

blonder shorter hair 

wildflowers between the houses 

madevillia  

we need rain 

flowerbed has filled in 

pug stairs, no they are not spoiled, lol 

Danny at the banquet 

Texas Rangers mascot at the special olympics banquet 

I am finally feeling good. Too bad it won`t last long.Friday is my whipple. Oh well. I slept good last night even though I had some weird dreams. Today Ken and I go sign our wills and durable powers of attornies and all that stuff. Lynn came over last night and brought some stairs that were used in some play and the dogs actually use them to get on the bed. That is a relief they can get on the bed without being lifted. Ken ordered a laptop for me last night, Dude I`m getting a dell!!! He is such a sweetie. Well I need to type up a phone number list to take to the hospital. I`ll try to write tomorrow.

I got out of the hospital Monday and spent most of Tuesday throwing up. Wed we went to Dr Lyons and he changed my meds. Instead of 5 antibiotics a day I take 2 and he gave me some really good drug to settle my tummy. We also met with the life planner and got a prelim draft of our will done. We meet with lawyer Tues to sign it. Yesterday I went to the special olympics banquet but we didn`t stay long becuse Danny wanted to leave. He stayed home today and we are just kickin back and relaxin. Oh and I got my haircut yesterday and Lynn took the puggies to the vet for me. Lynn has been such a help!

Last Wed nite when we got to bowling my side started hurting real bad. It finally stopped hurting later in the evening. Thur morn I felt okay. Around 3 it started hurting again. Around 6 I started feeling real bad and took temp and it was 101 so I had Ken take me to the ER. They did all sorts of test, xray, sonograms, blood, urine, Ct scan and checked me in. The next day Dr Kameron replaced my stint. It was clogged and infected. I stayed in the hospital until Mon around 7 pm. I am so glad to be home. I am on 2 different antibiotics. Hopefully it will clear the infection all up.

Guess I`ve been too depressed. Linders office called yesterday and the biopsy was positive. Last night we took Danny to bowling and I had the worst pain in my side the whole time. I haven`t been taking any of my pills. Last time I did I threw up. I have been having awful violent dreams. I dreamed last night my house was group home and all the kids kept attacking me and I couldn`t call for help. Life is a bitch and it had puppies!! Well on the bright side I get my teeth cleaned today and the pain in my side is a lot better ....at least at the moment.

My blog was slow coming up I was worried it was gone. Yesterday I went to Methodist in Dallas and had the internal sonogram and biopsy. I don`t have the biopsy results yet but the sonogram was good news. There is a small tumor but there is a space between it and what ever major blood vessel is there so it is very operative. On the way home we went to whataburger. What a mistake!! I was so sick last night. I still feel kinda weak today. I just called the dentist and I get my teeth cleaned Thursday. I pre register at the hospital May 25th. Danny stayed home from school today because they were going to the zoo and he didn`t want to go. Last year I went with him but I just couldn`t go today. Amy just called she interviewed at Sam today and thought it went well. That would be cool if she taught there. Okay I think I`ll take a shower I think I`ll feel better.

Its a jungle out there  

The flowers are really doing good  

It is storming, lots of thunder and rain. I already slept 5 hours so I am up. I just read M D Andersons page about pancreatic cancer. I guess I`ll do just as well staying here to be treated. I don`t want to be alone in Houston. I guess I was super lucky that I had gallbladder trouble. Sounds like most goes undetected until it is too late to treat. It also sounds like I am very young to have it. Most people are 65-79 that have it. I guess that is to my advantage. I will also have to take some anti ulcer drug everyday for the rest of my life after surgery. Geez another pill to my arsnel. Oh well I`ll be thin, can`t be too thin or too rich, right? I`ll be glad when all this over. I am worried about the surgery though. Main complications are bleeding and infection. Well I will hope for the best thats about all I can do.

Ken took me to Dr.Kameron today. He called his friend/colleague Dr Jeffery Linder at Methodist in Dallas. I go Monday for the internal sonogram and needle biopsy. I asked him who he would have do the whiffle on him if he needed one. He said Gus was a good friend of his , somewhat evading the question. We had to go back to Dr.Lyons to get my records to take to Dallas and saw Dr.Lyons. He sure is nice and seems excited about doing my surgery. I guess thats good. He said Dr.Bowers would be doing it with him and he had already done 3 this year so I guess I`m ok with it. It is just so damn scarey. Well if it don`t kill me it will make me stronger right?

I have been sleeping about 10 hours a night. I am beginning to think that is too much. The circles under my eyes are gone. I wish I could say the same about Ken. He has horrible circles under his.
I guess I need to tell my mom about my surgery I am having.I think I will wait until I know a date for sure.
I am getting bored. I wish I wasn`t still sore I need to do a lot of weeding.

I went to Dr.Lyons today.I am pretty hopeful. The blood work came back with elevated enzymes, the brushings came back atypical and one test still wasn`t in. I go to Dr.Kameron tomorrow. I will have to go to Methodist in Dallas to have the internal sonogram and needle biopsy. They are going to do the whipple procedure in a week or so. They are going to treat it aggressively so I can be one of the surviors. I feel really good about it. I think it was good news today. They didn`t see any mass on my cat scan so it may be really small. I did ask about chemo or radiation yet, I can wait to know at this point. I am not looking forward to the surgery at all. It`s a really big surgery. They will take the head of my pancreas, part of my small intestines, part of my stomache and resect my intestine to my bile duct. At least thats what I understand. John Hopkins has a good web site explaining it all.