fragilex mom blog

I went to chemo today. I feel ok. When I was changing into my pj`s I found a new abscess. It hasn`t opened up yet but I`m sure it will this weekend. I wonder if that is why I have been getting headaches. I hope I can go to chemo next week. I want to get it over with! Gawd Ken told me tonight he doesnT want Danny to go to school next year and i just boo-hooed!!!! I am going to try to get MHMR to come get him ready for school in the mornings. Ken is exhausted. He has been doing absolutely everything. I am doing good to water my plants and put out bird feed. I really want him to go to school or I will be stressed trying to get him to activities to keep him somewhat busy. He is losing some weight around 30 pounds this year and if he doesn`t go to school all he wants to do is play on his computer and nintendo. If I feel good enough i`m going to make Easter or st.Patricks day cookies for school. I miss going to school activiities. Mon is Texas pubic school week and i am planning to go Monday night.I had to get up early so I think i`ll go to sleep early. peace and love